About the Authors

Ida J. Korfage

Roles Conceptualization, Formal analysis, Funding acquisition, Investigation, Methodology, Project administration, Supervision, Validation, Writing – original draft, Writing – review & editing

i.korfage@erasmusmc.nl

Affiliation Department of Public Health, Erasmus MC, Rotterdam, Netherlands

Giulia Carreras

Roles Formal analysis, Methodology, Writing – original draft, Writing – review & editing

Affiliation Clinical Epidemiology, Oncological Network, Prevention and Research Institute (ISPRO), Florence, Italy

Caroline M. Arnfeldt Christensen

Roles Investigation, Methodology, Writing – review & editing

Affiliations Department of Public Health, University of Copenhagen, Copenhagen, Denmark, Department of Palliative Medicine, Research Unit, Bispebjerg Hospital, Copenhagen, Denmark

Pascalle Billekens

Roles Methodology, Supervision, Writing – review & editing

Affiliation Laurens, Rotterdam, Netherlands

Louise Bramley

Roles Investigation, Writing – review & editing

Affiliation Institute of Nursing and Midwifery Care Excellence, Nottingham University Hospitals NHS Trust, Nottingham, United Kingdom

Linda Briggs

Roles Methodology, Writing – review & editing

Affiliation Respecting Choices, C-TAC Innovations, Oregon, Wisconsin, United States of America

Francesco Bulli

Roles Investigation, Writing – review & editing

Affiliation Clinical Epidemiology, Oncological Network, Prevention and Research Institute (ISPRO), Florence, Italy

Glenys Caswell

Roles Investigation, Writing – review & editing

Affiliation School of Health Sciences, University of Nottingham, Nottingham, United Kingdom

Branka Červ

Roles Investigation, Writing – review & editing

Affiliation University Clinic of Respiratory and Allergic Diseases Golnik, Golnik, Slovenia

Johannes J. M. van Delden

Roles Conceptualization, Funding acquisition, Methodology, Supervision, Writing – review & editing

Affiliation Julius Centre for Health Sciences and Primary Care, UMC Utrecht, Utrecht, Netherlands

Luc Deliens

Roles Methodology, Validation, Writing – review & editing

Affiliation End-of-Life Care Research Group, Vrije Universiteit Brussel and Ghent University, Brussels, Belgium

Lesley Dunleavy

Roles Investigation, Project administration, Writing – review & editing

Affiliation International Observatory on End of Life Care, Division of Health Research, Lancaster University, Lancaster, United Kingdom

Kim Eecloo

Roles Data curation, Investigation, Project administration, Writing – review & editing

Affiliation End-of-Life Care Research Group, Vrije Universiteit Brussel and Ghent University, Brussels, Belgium

Giuseppe Gorini

Roles Methodology, Writing – original draft, Writing – review & editing

Affiliation Clinical Epidemiology, Oncological Network, Prevention and Research Institute (ISPRO), Florence, Italy

Mogens Groenvold

Roles Conceptualization, Funding acquisition, Methodology, Writing – original draft, Writing – review & editing

Affiliations Department of Public Health, University of Copenhagen, Copenhagen, Denmark, Department of Palliative Medicine, Research Unit, Bispebjerg Hospital, Copenhagen, Denmark

Bud Hammes

Roles Methodology, Supervision, Writing – original draft, Writing – review & editing

Affiliation Respecting Choices, C-TAC Innovations, Oregon, Wisconsin, United States of America

Francesca Ingravallo

Roles Methodology, Writing – original draft, Writing – review & editing

Affiliation Department of Medical and Surgical Sciences (DIMEC), University of Bologna, Bologna, Italy

Lea J. Jabbarian

Roles Data curation, Investigation, Writing – original draft, Writing – review & editing

Affiliation Department of Public Health, Erasmus MC, Rotterdam, Netherlands

Marijke C. Kars

Roles Investigation, Writing – original draft, Writing – review & editing

Affiliation Julius Centre for Health Sciences and Primary Care, UMC Utrecht, Utrecht, Netherlands

Hana Kodba-Čeh

Roles Investigation, Writing – review & editing

Affiliation University Clinic of Respiratory and Allergic Diseases Golnik, Golnik, Slovenia

Urska Lunder

Roles Investigation, Methodology, Writing – review & editing

Affiliation University Clinic of Respiratory and Allergic Diseases Golnik, Golnik, Slovenia

Guido Miccinesi

Roles Investigation, Methodology, Writing – review & editing

Affiliation Clinical Epidemiology, Oncological Network, Prevention and Research Institute (ISPRO), Florence, Italy

Alenka Mimić

Roles Investigation, Writing – review & editing

Affiliation University Clinic of Respiratory and Allergic Diseases Golnik, Golnik, Slovenia

Polona Ozbič

Roles Investigation, Writing – review & editing

Affiliation University Clinic of Respiratory and Allergic Diseases Golnik, Golnik, Slovenia

Sheila A. Payne

Roles Investigation, Methodology, Writing – review & editing

Affiliation International Observatory on End of Life Care, Division of Health Research, Lancaster University, Lancaster, United Kingdom

Suzanne Polinder

Roles Methodology, Supervision, Writing – review & editing

Affiliation Department of Public Health, Erasmus MC, Rotterdam, Netherlands

Kristian Pollock

Roles Investigation, Supervision, Writing – review & editing

Affiliation School of Health Sciences, University of Nottingham, Nottingham, United Kingdom

Nancy J. Preston

Roles Investigation, Methodology, Writing – review & editing

Affiliation International Observatory on End of Life Care, Division of Health Research, Lancaster University, Lancaster, United Kingdom

Jane Seymour

Roles Conceptualization, Investigation, Writing – review & editing

Affiliation Health Sciences School, University of Sheffield, Sheffield, United Kingdom

Anja Simonič

Roles Investigation, Writing – review & editing

Affiliation University Clinic of Respiratory and Allergic Diseases Golnik, Golnik, Slovenia

Anna Thit Johnsen

Roles Investigation, Methodology, Writing – review & editing

Affiliations Department of Public Health, University of Copenhagen, Copenhagen, Denmark, Department of Palliative Medicine, Research Unit, Bispebjerg Hospital, Copenhagen, Denmark

Alessandro Toccafondi

Roles Investigation, Writing – review & editing

Affiliation Clinical Epidemiology, Oncological Network, Prevention and Research Institute (ISPRO), Florence, Italy

Mariëtte N. Verkissen

Roles Investigation, Writing – review & editing

Affiliation End-of-Life Care Research Group, Vrije Universiteit Brussel and Ghent University, Brussels, Belgium

Andrew Wilcock

Roles Investigation, Writing – review & editing

Affiliation School of Medicine, University of Nottingham, Nottingham, United Kingdom

Marieke Zwakman

Roles Investigation, Writing – review & editing

Affiliation Julius Centre for Health Sciences and Primary Care, UMC Utrecht, Utrecht, Netherlands

Agnes van der Heide

Roles Conceptualization, Funding acquisition, Investigation, Methodology, Supervision, Writing – original draft, Writing – review & editing

‡ These authors are joint senior authors on this work.

Affiliation Department of Public Health, Erasmus MC, Rotterdam, Netherlands

Judith A. C. Rietjens

Roles Conceptualization, Funding acquisition, Investigation, Methodology, Supervision, Writing – original draft, Writing – review & editing

‡ These authors are joint senior authors on this work.

Affiliation Department of Public Health, Erasmus MC, Rotterdam, Netherlands

Competing Interests

I have read the journal’s policy and the authors of this manuscript have the following competing interests: BH and LB are developers of Respecting Choices and report personal fees from Gundersen Health, outside the submitted work.